We’re sitting in the waiting room. It’s cold. Perhaps I should’ve put some more clothes on? Or something else ... You’re reading a magazine about gardens; you love gardening and you say that you were in the garden yesterday and moved your gladioli away from the lawn, so you could mow it. It had already grown long and was green again after the three months without rain.

You’re called in next, and I’m allowed to go in with you. The nurse is nice. "Yes, of course you can go in.” - "No, you just come with us, there’ll be no one other than your mother in the room during the radiotherapy." I watch how they sight the green laser beams precisely over the purple crosses drawn on your skin.

"Come with me. It won’t take long."

Then I'm sitting in the waiting room again, flicking through the gardening and fashion magazines: well decorated bushes, faces and bodies. I’ve written in my diary "Mum beams", but you’re hardly beaming when you leave there. You get smaller and smaller every time I see you. We stay there because we’ve asked for an extra examination today, we’ve asked them to call a doctor. You’re afraid that a haemorrhoid you’ve been treating for many months is actually another tumour. Can it be right that it’s not getting better? Can it be right that a haemorrhoid is so hard? I’ve insisted on an examination now. We don't need to wait, I can see no reason to worry.

The doctor comes to meet us, her name is Mette. It’s good to know the name of who we’re talking to. It gives it all a personal touch, even though we’ll never see them again. 

My first anxiety came when she was at the neurologist. I don't know where it came from because she wasn’t worried herself.

She had tried everything for her back: chiropractor, physiotherapist, injections at the doctor’s. It helped a little at first, but when I called again... That stupid back.

The doctor wanted her to see the neurologist in Aarhus. He lived out by the coast not far from me, so they came by for coffee afterwards. I had bought food and wine because I thought for sure they would stay for dinner. But everything was already different. She simply didn’t have the energy, she said. I want to go home now. That wasn’t at all like her!

At that time, no one had even thought of the ugly word. That came later. But it was as if my subconscious was already sending me signals. I’d just won a book in a competition at a bookshop. On the internet. I‘d unpacked it that same afternoon, it was on the table.

She’d started reading a lot. We used to discuss the novels we had read since last time. Exchange best titles.

Thorstein Thomsen: Snow on her face, she read the cover aloud, and asked: Is it good?

-       I don't know, I’ve only just opened the parcel.

Then I heard myself saying: Would you like to have it?

Oh, no. You read it first. Then I can borrow it from you.

No. Here, take it. I want you to have it. 

It felt as if it was really important that she accepted the book.

I felt the same way when my younger brother disappeared when I was eight years old. I had a strange feeling that something very, very bad was going to happen. Back then I took to my bed Got under the covers and tried to fall asleep.

This time, the book became something to sort of ward off the evil that I instinctively already knew would come.

When I visited her for the first time at hospital, the book was on her bedside table next to all the flowers and lemonade. In the end, the pain was so bad that she couldn’t even lie in her bed. She screamed. And the ambulance came to pick her up at the same time as the answer came from the scan the neurologist had ordered. Metastases everywhere …. In her bones ... in her back. But it came from her lungs. She smoked like a chimney.

-       Have you read it?

-       No, I haven’t really got around to it.

-       How the hell could I not think about it? Then she said the word. For the first time. Cancer. It didn’t even cross my mind. Hell, I really thought it was my back.

And it really was odd that it hadn’t crossed her mind. She was a senior nurse at the local hospital. An experienced surgery nurse. I clearly remember the first time she assisted in open lung surgery on a patient with smoker’s lungs.

-       Yuck! That’s disgusting. It really does shows up on the lungs.

But she kept on smoking. She took her last puff of the day just before lying down to sleep and her first puff straight after waking up in the morning. There was always a pack on her bedside table.

But because cancer often sneaks up on you. And because she had overlooked all of the symptoms, her death became a terribly bitter story.

And literally a race against time and bureaucracy. An ambush that none of us really had the strength to fight.

Don’t fall ill in the spring. We said to each other afterwards. When before we knew what was happening we’d lost her’. Because spring is full of holidays and days off. Tests results are delayed. Laboratories are closed. There’s no vacant beds. And even the smallest examinations take forever. And the next stop was the hospice. She didn’t come back home again. She didn’t come back home again. Crazy! Not giving her any time at home felt like an act of violence.

The cove’s completely still

Seaweed has been washed ashore

But it doesn’t smell any more

There’s frost in the air

I look at you

Only your body is left

“Let go,” I say

Inside myself

You don’t hear me

Because you won’t let go

I sat at your side

When the ambulance came to get you

I held your hand

While I described our journey

The journey we’d both taken

Thousands of times

Backwards and forwards

Now we’re going past Martin and Agnes’ farm

I wonder who lives there now

The view over Kalø cove is beautiful today

Do you remember when we rode our bikes here?

You're smiling

You’re trying to smile

You aren’t there

And yet you are

You’ve been at home all weekend

Lying in bed

In the middle of the living room

Everyone you know has visited

Everyone

Every time someone new came to the door

You opened your eyes

Hello Victoria

Hello Arne is that you?

They came to say goodbye

And you gave them what

They came for

That last week at the hospital you disappeared

Day by day

“Are you afraid of dying?” I asked

“No,” you said

But I know

It wasn’t true

You weren’t ready to leave this world

But you kept it to yourself

We were eating at that restaurant

Your skin was orange

“You have to call the doctor,” I said

You said there was no hurry

And ate a mouthful of plaice

We looked at each other

Dad, Marcus and I

Everyone knew

You knew

No one wanted to know

We ate our meal

We toasted each other

For life and for love

That’s how it felt at least

The treatment had been hard on you

Your strong body was bent over

You were walking with Grandma's stick

Even though you were only 63

Things went well in the first year

We were full of hope

You were the doting grandmother

My children loved you so much

You still had strong thick hair

You finally found a use for those locks

The chemo flooded your veins on Thursdays and Fridays

Every other week

You never complained

“They’ve come a long way,” you said

We often see the same people

You never said

That the same people fall away

One by one

The doctor said

That you had between two months and ten years to live

My mother stopped breathing

“No one can be sure

Whether my mother can live for fifteen years,” I said

“No one can be sure,” the doctor said

“You must be able to do something,” you said

When you got your breath back

You pleaded with the doctor

To get your life back

“I’m sorry, Mrs Bay

But we can give you a good life

While you’re here”

That was just before Christmas

We found out when you couldn’t go up the stairs

The stairs to your living room

You'd been going up those stairs for almost 40 years

I remember that time

You fell down the stairs

I was only a child

And I ran out to the drawer

To find some chewing gum

I could comfort you with

Thomas and I both stood and watched

While you cried

And chewed the gum

I haven't seen you cry since

Until now

Now that you have to die

We can see your tears again

We’ve got nothing to comfort you with

I sit down on the middle stair

I struggle to breathe

Don’t know my own body

Why’s it failing me

This mustn’t spoil Christmas

It mustn’t destroy my family

Rasmus comes out into the corridor

He can hear

Something’s wrong

“Something is wrong,” I say

He calls the doctor immediately

Tine and Thomas go with us

The doctor sits at his desk

He looks kind and friendly

“He must have good news,” I think

And I smile at him

As if it can help

“You have cancer,” he says

I keep on smiling

“You have cancer,” he repeats

I’m still smiling

But I can’t catch my breath

“Am I going to die?” I think

I should tell the doctor

“Save me!” I shout

Inside myself

“Save me,” I ask, quietly

While I try to hold back the tears

We were supposed to have a nice day

Since Tine and Thomas are with us

Rasmus drives me to chemo every other week

I hear the other patients’ stories

One’s been coming for ten years

I forget the others

I’m struggling with everything I’ve got

I’m smiling in my struggle

They all believe in me

So I try to as well

But my body doesn’t believe

And one day

I give up believing

I use my mother's walking stick

My grandchildren are laughing at me

I’m a real granny

I’ve become my mother

Twenty years before my time

I see my death in Tine's eyes

When she says

That I should call the doctor

I turned off the light in the bathroom

So my orange skin wasn’t quite so insistent

But Tine insists

She doesn't understand

That when I call

It’s all over

I’m hospitalised two days after

The doctor asks

If I want to be revived

“Damn!” I think

“No,” I say

Because they’ve all given up on me

I’ve given up on me

My body’s given up

I withdraw into myself

I hear their voices

They’re crying

And laughing

Talking about everyday life

Life that will go on for them

When I leave

This earth

This life

My body

My family

I know I'm going to die

But I don’t want to

Everyone’s saying goodbye

As I lie there in the living room

Who would have thought that they’re all here

For me

I owe them all my thanks

But I’ve got nothing left to give

I'm being driven to a hospice

It’s my final wish

I want to die with a view over Kalø cove

Tine’s with me

Now it’s me

I’m the child

When we get there

I'm gone

My eyes don't see any more

I can only feel the pain

The pain of lying down

The pain of missing

“Let go,” thinks Tine

But she doesn’t say it

I want to let go

But my body’s failing me again

It’s too strong

To die

They’re all watching over me

Day and night

While the frost sets in

When dawn breaks

My body’s ready

To let go of this life

My life

Forever

Goodbye

On 12 October we experimented with the "3 given words and a postcard"-technique to write a meaningful poem.

Story 1

Every morning I wake up feeling like someone has punched me in my side. The first step out of bed is always the most difficult because it means a new day of worrying and having to face people around me who don’t look at me like they used to do. It feels like someone has written CANCER in capital letters on my forehead. I don't look at other people in the same way as before, and they don't look at me in the same way. To them, I’m fragile, as if I could break at any moment. To me, I’m like a bomb ready to explode and destroy everything around me. I want to escape my thoughts, I want to dream, fall into a deep sleep. But every morning I wake up again, trying to hold on to my dreams as they are ripped away from me by the fear and all my thoughts.

Story 2

My cheek lies flat against the ice, it feels hard, cold and tingly. The rough, icy surface scratches my cheek. I haven't been on the ice for two months and my skates feel too tight around my ankles. I knew it would end this way: me lying here on the ice after falling. I lie completely still with my cheek against the ice; it feels almost as if it has become stuck to the ice and if I were to lift my head now, my cheek would stay put and there would be a gaping and bleeding red hole in my face. Slowly I manage to get up on my knees: It’s still there, my cheek, that is. It’s cold and pink but it’s not stuck on the ice. My clothes are damp now and my head is cold. I forgot my cap, I used to have my long blond hair to keep me warm. I still haven’t grown used to having no hair, so I always end up freezing. Damn it. I should just give up skating, but I can’t do that either because that would mean that disgusting, annoying, foul-smelling disease would win. Damn it. I wish it would just disappear from my body. Damn it.

Story 3

05.15 breakfast. The oatmeal tastes of nothing - just like everything else. The chemo has killed off my taste buds. At 05.50 I go to the fitness centre. Even though I am physically and mentally exhausted, I go to the fitness centre. This is my free space. The cancer will always be there. It’s in my bones. With this at the back of my mind I enter the fitness room. I smile even though I'm not at all happy. This is something I've taught myself. Even though I’ve talked with the doctor, psychologists, friends and family, I can't let go of the thought. After training, I’m off to hospital for a check-up. I get blood tests and other treatments. Going through the check-ups aren’t the worst thing. It’s the week that comes after. The answers. What do the results say? Is the treatment working? Progress or setback?. PSA or piss off? 

The results of the "Wherem am I? - Contemporary literature and creative writing in the classroom" workshop. Photo and text by Kathleen Vanderstraeten.

 still remember her – the young woman, the girl. She was 20 years old – or thereabouts. She made an impression on me – and I on her. I was her contact nurse during her radiation therapy. But sometimes I was also her friend and her mother. I still remember the day she took me aside in the dressing room to ask for advice about her future life. She confided her anxieties, hopes and dreams. I also remember that she was absolutely crazy about Thomas Helmig. He had just released a new CD and she played it on repeat every day. It became a habit for us to remember the exact place we had come to in a song and then find it again the next day. She was neither the first nor the last young person I have been in contact with. But the only other young girl who made just as big an impression on me, I only met once. She’d been sent over to us for a single treatment – a fraction. She sat there in the room with her parents in the new clothes that they’d just been out to buy. And that she was going to go and return afterwards . She didn’t want them anyway. She sat there shuddering slightly in the chair – huddled together and with her head bent low. She clearly didn’t want to be there. I told her, as I’m supposed to, about what was going to happen – but it was only her parents who spoke to me. And then it happened – I asked the completely wrong question. I said "How are you?" – the answer fell promptly and with all the disdain of youth: “How do you think I feel?" It was my worst moment – but also my best – one of those moments when the answer, the continuation of the conversation, came promptly and without thinking. "I don't think that you're feeling very well – I don't think you want to be here," I said, and continued: "But I’m asking you because I need to find out how I can help you with what you have to go through here with me." Somehow what I said – the fact that I was able to react to her dissatisfaction with the whole situation – say the right thing – without having to think about it first - made her open up to me. I don’t think that she remembers me for anything in particular - in this regard, the two girls I remember are very different. For one of them I was something special – for the other I was just one of those irritating nurses. But with regard to the girl who was annoyed with me, I still got something positive out of it. Something that has affected how I approach other young people.

Perhaps this is more important than all the other things we learn during our training and other courses. Not courses and everything else aren’t important. But what we learn from our patients – from meeting them and listening to them. That we listen and don’t forget to pay attention to them, perhaps that’s the most important tool for developing our nursing and care – our way of being with and helping them.

As I write this, I also think about all of my mistakes – all the times (granted, one single episode in particular) where I’ve said or done something that was just totally wrong or silly in that specific situation. But you learn from these situations, too.

"IV Festival dos Eidos" is the festival of scenic poetry and musics, that will celebrate on August 22th-26th on Parada village of Courel chain of hills (Galicia).

Festival dos Eidos is celebrated each August on Courel Hills since 2015. 3 days of cultural programation of different artistic happenings linked to Literature: Poetry readings, music lives, theatre plays, art exhibitions, guided routes over different spaces of a @Novoneyra house and open museum: Living museum and outdoors.

Member of @EULitfest, the European network of literary festivals to isolated communities litfest.eu and Creative Europe SILO project

Created by Lotte Colaers and Kaat Vanmuysen

The results of the "Wherem am I? - Contemporary literature and creative writing in the classroom" workshop. Photo and text by Tobias Frenssen.

Over the past week, the Municipal Library hosted multiple lucid-pedagogical activities, stimulated by the students of the Technical Course of Psychosocial Support of the Professional School of Pico, instilling the taste for reading. The students dramatized

We celebrated the first grand edition of the SILO Literature and Poetry day for future teachers. Here is an impression if what you can do with books!

There’s a beginning and an end. It’s obvious that he’s in pain, so much that he can’t sit in an ordinary chair, but has to use the couch while he waits for the news. He’s lying on one side, hopeful, trying to catch our gazes to see if he can read whether we know what the news will. I’ve a hard time keeping eye contact, the red familiar logo keeps catching my eye. Finally, it’s our turn and the doctor drones on and on. We nod and are afraid to ask too many questions. If things become too clear, we might lose hope, and then it's over. It has a name that we can’t pronounce. We say goodbye to the doctor and the pale green walls. He sits down on the couch again and looks at us hopefully. Above his head I recognise the doctor's verdict ‘Myelomatose’ and the red logo on the poster.

He looks relieved and leans against the wall.

"Well, at least it wasn’t cancer."

"He’s hit his head." The white-coated doctor with a foreign-sounding name looks at us emphatically and assures us that they will do everything they can. We cling on to hope. So accustomed to the fear, then the hope and joy when yet another crisis is averted. We listen anxiously at every step approaching outside the door, and we breathe a sigh of relief when the hectic steps continue down the corridor without bringing us bad news. New steps stop at the door, and it opens. He’s decided. The doctor who said he’d do everything he could has gone home. We sit quietly without talking to each other and are only interrupted by the nurse who adjusts the morphine. This is the end.

This is a fun group activity, leading to surprising results.

From 16th to 19th January 2018 we have been visiting Krokodil Center for Contemporary Literature with the company of our sister-on-arms of twin Engage! project. We have been working on 2019 planning as last phase of our project and rethinking together the sustainability of the project and the partnership with changes and enlargements. Our partnership has prepared and mapped our events from the first part of 2019 walking to our closing conference. Lisbon, June! Into ENCC (European Network of Cultural Centres)! The best plan!. Remember visit Krokodil and enjoy the best multi-literature-function space as we have done and please convince them to be your guides on Museum of Contemporary Art. Walk with their dog!

The phone rings. It’s 5am in the morning. It's still dark outside. It’s from the Hospice. I’m certain it is. Who else could it be? I only just returned from there. Have slept a few hours, I reckon. Did I say sleep? Have I slept? My body won’t give in. My body is floating 5 inches above the mattress, which is on the floor in my daughter's bedroom. I can’t sleep in the same room as my husband. He snores. I can't take it. How can anyone lie down and sleep a completely ordinary sleep? How can he fill the entire room with his breathing? Breathing pointing to life. My mum’s breathing is pointing to death. I sat listening to her breathing all day yesterday. With my brother. The heaviest breathing I’ve ever heard. Her body rises and falls with every breath. Fighting. Struggling. She’s stopped eating. She’s stopped drinking. She’s stopped speaking.

I pick up the phone. I try to get up. Need something to hold on to.

- It’s the night nurse from the Palliative Team.

She says her name. I don't catch it. She speaks with an accent, but that's not why I don’t catch her name. The name doesn’t matter. I'm up now, walking out the door, or so I think, but my head is against the window blinds. I turn around. The room is so small that I have to step over the mattress. There’s only one way out. And it is narrow and soft.

“I've just been in to turn your mother. She was all blue on one side. I think you need to come in now.”

I fall down on the mattress.

“I’ll leave straight away.”

“I can't promise you, there will be enough time to get here.”

“I’m coming.”

My daughter starts crying. I leave the room anyway. I feel as if I’m choking. I can’t look after her now. Don’t have room for care. She cries even louder. My husband comes in. Tells her that it's grandma, that grandma is dying. Why is he saying that? He’s taking hope away from me too. I throw myself into the car. Drive far too fast along the narrow roads. The nurse that was there yesterday said:

“The body is a machine. It sort of has to give up. Stop.”

If the body is a machine, why can't we fix it? I have small children. We need grandma. There’s no one else who can love them like a grandma. Like their grandma. And I won’t be able to laugh with my mum about the kids’ cute and funny ways. She kept saying again and again:

“It’s unbearable to think that I won’t be able to watch my grandchildren grow up.”

I wish she would get up. That it wasn’t over yet. I push hard on the accelerator. 140 km/h. Hoping to catch up with something. Hoping to get there in time to say something. That’s what we can still do. We’ve never really talked. We’ve often misunderstood each other. What should I say? Wake up!

My mother has stabilised. She is no longer blue. She refuses to die. My father is by the bed. He's taken my place. Where I sat all day yesterday. He gives me one of my mother's hands, the one he’s not holding. Now, he’s the one in charge. I take her hand. It’s far too intimate to sit here with him. We’ve never really talked about feelings. Now that’s all there is. I can’t cope. I want my mother to myself. Outside in the garden, the plants have withered. They have sucked all the energy into their roots. Death is outside. The window is ajar. In November. By the evening, my mum will have died, but I don't know that yet.

A feeling of joy welled up inside me. Actually it was a bit weird, given that I was going to have yet another bag of poison running into my body. But this time was the last time. After today, it couldn’t get any worse. Once this poison had killed what it should, I could start rebuilding myself and my body. OK, I still had radiation ahead, but today was a day to celebrate.

Spirits were high, and we teased each other and laughed while the nurse set up the chemo and started my treatment. A young woman came into the room and seemed relieved that the bed next to me was free. The first patient can choose between the chair and the bed, and previously I’ve usually chosen the bed so that I could have a nap while the chemo dripped in; a very necessary nap if I was to have the energy to drive all the way back home again. But today I had chosen the chair, because today I didn’t want to sleep. Today I wanted the full experience. Today was the last time.

I apologised for the rather excited atmosphere and explained why. The young woman fell quiet and looked at me with tears in her eyes. “Congratulations,” she said. We talked a bit, and slowly it dawned on me that her situation was completely different from mine. She would never finish her chemo. My joy turned into a deep sense of gratitude. We continued talking until my treatment was over. We talked about her son, about hair and nails, about my IV cannula, about family reactions and feelings, about life and what it’s like when the end suddenly feels so close.

Because our immune systems were so weak, I couldn't hug her when I left, but I’ll never forget her. That meeting with her didn’t mar my joy that this phase was over, but my joy had become more heartfelt and subtle. During that hour we spent together, it felt as if we knew each other; that even though we were at completely different stages, at that moment we were nevertheless a reflection of each other: the same.

During a Sun Salutation in yoga, I notice that my clothes didn’t feel comfortable on me. I adjust them and go on to the next exercise. There's still something bothering me, but it’s not on the outside and I can't take it away. The next morning I'm number 7 in the phone queue for the doctor’s office. I’m about to give up, maybe the lump in my abdomen will just go away by itself? I know that it won’t, though, and therefore I wait. It’s hard waiting. I tell the doctor that I have a lump in my stomach! The doctor says "Are you pregnant"? Even though it was my highest wish I had to answer “No”'. The doctor says "come straight away". I call my boyfriend and cry – I’m afraid, expecting the worst. Perhaps I knew already this morning what the day would bring, because I didn’t put on my mascara. The doctor put me on a cancer treatment pathway and asked me to go to the hospital the following Tuesday. We went to our holiday home during the weekend. I sat with my boyfriend in front of the wood stove and drank red wine. We were hopeful and convinced each other that it was probably just a harmless cyst, just like the one my mother had when she was pregnant with me. I alternated between hope and fear. We shared the hope, but I was often alone with my fears. During an ultrasound scan, the doctor confirmed my fears. Yes, it’s a cyst but there is some tissue inside which could be cancerous. The plan is to have you go through an MR scan and then surgery. I'm afraid of cancer because you can die from it, but I'm almost just as afraid of losing the ability to have children. The waiting time: a void, a vacuum, it was long and merciless. I learned that as a human being you can’t cope with being sad all the time. It became a basic feeling, for a period, but I took my breaks from it. I went through surgery and then it was time to receive the news. Yes, I had cancer. 10 days passed before I received the answer about whether I needed final surgery. That was the doctor's code for saying whether my last ovary and my uterus also had to be removed. I wanted kids and couldn’t imagine a future without having kids. My boyfriend and I looked into alternative methods to have children, because what if? The biopsy result confirmed that the diagnosis was cancer. Fortunately, at such an early stage that my fertility could be preserved. 3 months later I became pregnant with Storm; he’ll turn 6 this Saturday.

I’ve sometimes felt like taking the time to try and tell the full narrative of my disease. Now I can.

I was probably a little surprised that I was the one to be struck by cancer. Yeah well, who isn’t?

I have to say, however, that I’d been close to cancer before, as two of my sisters have gone through breast cancer treatment, including radiation therapy.

The same year that I was diagnosed with breast cancer, my husband had had surgery to remove a cancerous tumour in one of his kidneys. He was subsequently declared cured of cancer and didn’t have to go through more treatment. But before he had his surgery, I must admit that I was very pessimistic about it all. I felt sure I was going to lose him. He was very calm about it and confident that he’d be alright. We weren’t exactly on the same page.

When I received a letter from Holstebro later that year after a screening, I knew that I had to go in for more tests - even before I’d opened the letter.

It was as if I felt it from the letter. My husband was surprisingly calm in his reaction – also in this situation.

My first meeting with Viborg Hospital was really positive. I was well received and the level of information was high. They took a biopsy of the lump.

A few days after my first examination I got a letter again, saying that the biopsy was positive.

My next consultation, with a new doctor, when I was told the final result, all went very quietly. It was as if I had said to myself beforehand “this is something I have to get through, and I’ll try to handle it as rationally as possible".

When I left the consultation, a treatment pathway had already been planned for me. I was there on a Monday and on the Thursday I came back for surgery.

I remember thinking how amazing it was that the cancer package the politicians were talking about with such pride was really working.

It was a little unfortunate, however, that I had to undergo surgery again because the surgeon hadn’t been able to remove enough healthy tissue the first time around. Since I don’t have any discomfort from going under anesthesia, it didn’t worry me that much. 

I drove past the hospital on my way home from work. My Dad smiled tiredly when he saw me. He was alone, so my Mum must have gone home. I saw my energetic, wonderful Dad. I didn’t see how tired he was. I only saw his smile. I asked him if he wanted me to read the newspaper to him. He said yes. He closed his eyes while I read. The nurse came in and asked what he wanted for dinner. My Dad asked her politely if I, his daughter, could have something too. I could see from looking at the nurse that it was not an option. She looked at me, embarrassed, apologetic. I said it didn't matter. It was perfectly fine. When she left, my Dad said he was sorry he couldn’t get me anything. "I'm sorry about that, Rie". I knew that it bothered him that he couldn’t offer me anything. That he was about to eat and there wasn’t anything for me. That was not right, that wasn’t who he was. He wasn’t someone who would sit and eat and not take care of his guest.

They brought in his meal and my Dad looked at the plate without interest. I could see suddenly see that he was tired. Seeing his lack of appetite, felt like a punch in the stomach. Tears welled up in my eyes. He closed his eyes again. “Maybe you should go home to your family now, Rie. They need you. And you've had a long day already. I think that would be better.”

I gave him a hug. As well as I could, with him lying and me standing. I said that I could see that he was tired today. And that I would come by again soon. I told him a bit about the kids; Jonathan had another game coming up tomorrow. He smiled wearily. "That’s good," he said, "Give them my love". 

He asked me to leave the door open when I left. I turned and waved at him from the corridor. He looked at me with a look I didn’t know. I stood still, unable to move. I waved again. He didn’t wave back. I felt his gaze pulling me towards him. Time stood still. It was as if we were standing at opposite ends of a long tunnel unable to reach each other. Not with words, gestures, not with anything. I stood paralysed. I felt a lifetime of love flow from him to me. He didn’t smile. He just looked at me with a long, intense gaze. From a place I didn’t know. It felt like an eternity. I hesitated, wanted to go back, but sent him a kiss and waved one last time. With tears running down my cheeks, I turned around and left.

That was the last time our eyes met. It was before I realised that my Dad could die. I knew things were going in the wrong direction, that the cancer had spread, that he was terminal. We cried and talked a little about it. But deep inside of me, the feeling that my Dad could never die was still there.

Not even that day at the hospital did I understand. Not until a few days later, sitting with my hand against his heart, feeling his final heartbeats, did I understand. I felt a golden pulse of energy literally streaming though my arm, as his last strength travelled into me. I panicked. Was frightened. I wanted to shout, ask him. Now what? What do you want me to do? Instead I cried again and again that I loved him. When I understood, it was too late. My Dad had died. 

The results of the "Wherem am I? - Contemporary literature and creative writing in the classroom" workshop. Photo and text by Noah Struys.

It was hard and it wore us out. Two things happened in the spring of 2008. I fell in love and my relationship with the young man was full of future plans and things to look forward to. Then my sister got the news. You’re a terminal patient. Her treatment back in 2005 hadn’t killed the cancer cells and now the last attempts at a cure had failed. Such a brave and strong human being - she was all alone when she got the news, despite our family motto: Don’t leave your head or your family at home when you go to the hospital. My husband-to-be and my sister really liked each other, and while I felt almost guilty about being so in love, she faded away, felt more and more pain and became ever so thin. At the metro station in Berlin, the pain became so strong that she had to crouch down and we thought it couldn’t get any worse; but it did. She lived for almost a year after receiving her death sentence, because we, her large family, gave her so much, and the process eventually made us stronger as a family. We know how you can die, and so do the 42 people that we sent daily mails to. Hospice Djursland, just hearing the name makes me want to run away, but it also reminds me of bright, frosty mornings and good humour. She was very clear about how she wanted to die, and that made it easier for us all. One evening after the other, we were at her side and we got to say our goodbyes to the smell of a decaying body and at the sight of all the wonderful fresh flowers in front of the panoramic window facing the fjord. There were so many of us that it was difficult to make room for us all. You were going to die of malnutrition and probably when the staff turned you over while you slept. You said that you’d like sleeping pills now and then slip into death. What time is it? It’s 17.10 on 19/2 2009. Then I’d like the pills. I love you. I love you, too. Then we sang for you for several hours, and at one point you hummed along in your drug-induced final passage into death. At 11.30, our brother-in-law, who was like a big brother to you, sat singing for you while holding your hand and then you opened your brown eyes, looked at him and breathed your final breath. We had been so sad for so long that there was no room for more grief, but the relief on your behalf and our own was enormous.

With a tray of 100 words youngsters create a poetic fantasy.

Here it is done with Dutch words but you can do this in any language with a set of randomly chosen nouns, adjectives, verbs, adverbes ...

Slideshow with pictures of all the texts and poems created during this unconventional and inspiring day. The day was filled with creative writing workshops that went beyond normality: we painted with words, played wordgames, created poems thanks to our smartphone and read stories next to a virtual bonfire!

The results of the "Wherem am I? - Contemporary literature and creative writing in the classroom" workshop. Photo and text by Yves Kun.

We’re sitting in the waiting room. It’s cold. Perhaps I should’ve put some more clothes on? Or something else ... You’re reading a magazine about gardens; you love gardening and you say that you were in the garden yesterday and moved your gladioli away from the lawn, so you could mow it. It had already grown long and was green again after the three months without rain.

You’re called in next, and I’m allowed to go in with you. The nurse is nice. "Yes, of course you can go in.” - "No, you just come with us, there’ll be no one other than your mother in the room during the radiotherapy." I watch how they sight the green laser beams precisely over the purple crosses drawn on your skin.

"Come with me. It won’t take long."

Then I'm sitting in the waiting room again, flicking through the gardening and fashion magazines: well decorated bushes, faces and bodies. I’ve written in my diary "Mum beams", but you’re hardly beaming when you leave there. You get smaller and smaller every time I see you. We stay there because we’ve asked for an extra examination today, we’ve asked them to call a doctor. You’re afraid that a haemorrhoid you’ve been treating for many months is actually another tumour. Can it be right that it’s not getting better? Can it be right that a haemorrhoid is so hard? I’ve insisted on an examination now. We don't need to wait, I can see no reason to worry.

The doctor comes to meet us, her name is Mette. It’s good to know the name of who we’re talking to. It gives it all a personal touch, even though we’ll never see them again. 

The results of the "Wherem am I? - Contemporary literature and creative writing in the classroom" workshop. Photo and text by Rick Heyens.

The results of the "Wherem am I? - Contemporary literature and creative writing in the classroom" workshop. Photo and text by Anke Leenders.

SILO workshop at the congres "from global teacher to global citizen" on 12/10.

If you opened the enveloppe and were to find a mix of poetry fragments and a hip hop texts, would you be able to see the difference?

In this workshop for poetry-haters, the haters realised they do not hate it as much as they thought... When Rihanna becomes Shakespeare and Shakespeare EMINEM!

Szépírók Társasága has launched their project, Budapest-fragments, which is also part of SILO. Cofinanced by the Open Society Institute, this programme connects the variuos literary representations of Budapest with contemporary writers and secondary school students. Students learn about how a metropolis like Budapest has been represented in Hungarian literary tradition through short literary texts and contemporary writers' video commentaries. Students are also encouraged to write about their own Budapest experience. Check out the project's website at https://budapesttoredekek.wordpress.com/

https://www.cm-madalena.pt/pt/component/content/article/2-geral/2134-madalena-encerra-comemoracoes-do-dia-mundial-do-livro-com-poetisa-filipa-duarte

Scrapping words, creating new meangful texts.

Kholoud Charaf is a poet, an art critic and a social activist in search of better opportunities for women and children who survived the war. She is now the new resident of the City of Krakow as part of the ICORN programme. Kholoud Charaf comes from Al Mjemr in the south of Syria. As a poet, Charaf has published one volume entitled The Remains of the Butterfly, published by Takween Publishing House in 2016. Th originality of literary images and metaphors and the author’s ability to transform the difficult events of war into beautiful, imaginary worlds generated from memories has been well received by critics.

Currently, Kholoud Charaf is working on her second collection of poetry, which will be titled As If I was Born to Escape the War, and a book documenting the atrocities of war in southern Syria. As an art critic, Charaf wrote many reviews of contemporary art exhibitions by Syrian and Arab artists.

The results of the "Wherem am I? - Contemporary literature and creative writing in the classroom" workshop. Photo and text by Eddy Exelmans.

http://cm-madalena.pt/pt/component/content/article/2-geral/2005-biblioteca-da-madalena-acolhe-projeto-pedagogico-inter-escolar

April 19, 2018, Budapest

In this discussion writers, translators, critics were invited to share their ideas on if and how the elitism of literature and literary institutions should be tackled, how new audiences can be reached and inspired, and if extending tools and skills of storytelling can lead to a more vivid and versatile literary culture. Questions discussed at the workshop included: What are the best recent practices in each country to reach new audiences for contemporary vernecular and foreign literature? What role primary and secondary education should have in this effort? Is creative writing taught at all school levels in each country? Have paerticipating writers ever attended a creative writing course? If yes, did it play a decisive role in their becoming a writer? What aims creative writing courses should persue? E.g. supporting would-be writers,  educating audiences, providing useful tools for consciousness-raising and self-reflection?

Participants: Éva Karádi (Hungary), Ida Hegazi Høyer (Norway), Jonis Jonevs (Latvia), Noémi Szécsi (Hungary), Clare Azzopardi (Malta), Maria A. Ioannou (Cyprus), Giorgos [gy] Panagi (Cyprus - Germany), Eszter Tarsoly (UK), Peter Sherwood (UK), Julia Sherwood (UK), Anna Gács (Hungary), Emy Koopman (Netherlands), Theresia Enzensberger (Germany), Julia Weber (Switzerland), Katharina Winkler (Germany), Dora Kaplárova (Czech Republic – Germany), Anita Furu (Denmark), Satu Vasantola (Finland), Gabi Csutak (Hungary), Jakub Juhás (Slovakia), Weronika Gogla (Poland), Ádám Németh (Hungary), Ivana Djilas (Slovenia), Matěj Hořava (Czech Republic), Gábor Csordás (Hungary), Dorotea Vučić (Croatia), Dulce Garcia (Portugal).

Photo by: Lenke Szilágyi

My mother died on 6 October 1997 on a sunny autumn day when the leaves were golden and the berries red. When you’re small, you fear and you worry that your mother’s going to die. And then she actually dies. It’s a great sorrow, a loss. You learn that the person who has died isn’t gone, but that you have to learn to live with her as being dead. In Sweden they talk of the dead as ‘people who have left time’. She’ll never age beyond her 80, almost 81, years. 

If this workshop had happened close to her death, I would have written about the process at the hospital and the last breath she took. I’ve done that already. And I’ve been writing diaries about her or to her for many years. It’s like having a conversation with her. As Jon Kalman writes in "The Heart of Man": Where there are words, there’s life. By writing you give expression to your grief and tears and thereby ease your heart. Over the years, the need to write / talk to her diminishes. It was a help describing to my doctor my mother’s story before, up to and including her death. That story includes my grandmother's story, who died in 1936 when my mother was just 19 years old. The story of her death and the visits to the cemetery have been with me my entire life. My mother's grandmother also died in 1936. Her name was Anna, the same as my mother, and my name is Kirsten, the same as my grandmother, who died five years before I was born. And I shared in my mother's grief from the beginning.

When a human dies, ‘a world dies’ and cries for ‘resurrection’. A family's history used to be passed down orally from generation to generation. Today, ‘the present’ takes up all the space with no historical perspective. History can also help create the space that you need in order to distance yourself enough to be able to give shape to your experience and reflect on it without ‘drowning’ in it. The words transfer the situation from the physical and material world into the collective meta-physical world of language, and this is a first step to relief. I read today that the Danish journalist Tommy Hansen has died in Berlin. In his last article, he wrote that every end holds a new beginning. As a daughter and therefore a relative, I was supposed to write from the perspective of my mother at this workshop. I don’t believe I can actually do that. If I were to do that, I would have to tell her story from before she fell ill, because what manifested itself was the person she had become during the course of her 80-year-long life What was her life like? In the family and in ‘the grand narrative of history? Born during WW1, lived through WW2 with two small children in a small town in southern Jutland near the border to Germany. I have her voice when she said: Now girl, time for you to go home and be bored. But I can’t know what she felt and what she thought. If I were a writer, I would try to identify with her situation and conjure up through writing what I imagine she must have thought. But I can’t cross that border. The umbilical cord has been cut from both sides. A third person could have talked about the mother-daughter relationship, like a social worker would register and experience it. If you want to understand my perspective on it, you cannot disregard my life-long work with life-story narratives, workers’ narratives, in both written and oral form. The guiding principle has been equality in diversity and therefore a limit has been set for what you say anything about. You know there’s something you don’t know and shouldn’t pretend to know anything about. You can change perspective to that of the person you’re listening to and asking questions, but you cannot

Three creative writing schools exchanged their experience at this event on May 26. One of them, Van Helyed Alapítvány lead by writer and documentary filmmaker Krisztra Bódis, teaches creative writing among other skills to children form the poorest environments in Hungary. Another one, Penna Írósuli lead by writer, translator Rita Abody, offers writing courses to elementary and secondary school students in Budapest, and the third one teaches writing to adults in Budapest. Readings and writing exercises were part of this unique and ratehr entertaining event. Though the interviewees speak in Hungarian in this short video, hopefully it is still able to convey the atmosphere of the event.

The nurse with the young wife of B

You sat there, young and pretty with your dark hair. You’d just entered the ward, so B could get his radiation treatment. Your body had an aura of anxiety and fatigue, but you wanted to talk. Talk between tears and rubbing hands. You sat uneasy in the chair, upset but with a glimmer of hope in your eyes.

You were so good at talking and I enjoyed your words, I could use them in my project, while I also mourned for your terrible faith. Your love for B - “The love of my life,” as you said and cried again. I burned in that moment.

Oh, I so wanted to help you, learn from you — I knew that I could help you, do something good for you.

Do you like me, do you believe in me, do you trust me?

You left with your arms around each other, 'we’re going to make it, the two of us together' – confident in your hope.

You came, trusting in us, you received and took from us what we had to give. From tension and uncertainty in the uneasy atmosphere, everything became a little easier and calm – and things fell slightly into place – a ‘reconciliation’, you called it.

Now you sit here, you’ve cut your beautiful hair – you’re strong and beautiful in your grief, but determined to get through this. I’m so happy and relieved to know that we could and did do something good and important.

I wonder whether you often think of us too?

We have developed a methodology that organisers of literature events can use to evaluate their current practices.

During the international ENGAGE! Workshop in Poland, we have reviewed together each other’s current practices in a creative way. Participants critically reviewed and improved each other's literary event with regards to access, contribution and/or co-decision. Our workshop methodology focused on "storytelling" about the own event, by means of building bricks, pens, paint, wood and all other creative tools that can be useful to facilitate a discussion. Participants were asked to first visualise their current practices and then share this in group.